Opinion: In my View - Children need help now

Caroline Hattersley, head of information, advice and advocacy at the National Autistic Society
Tuesday, May 19, 2009

There has been widespread coverage of new medical studies suggesting that scientists have pinpointed the genetic factors that could unlock the riddle of autism. This has been broadly welcomed, but the news has also caused alarm for some.

Autism is a serious, lifelong and disabling condition that affects the way people understand and communicate with the world around them. However, with the right support, many children with autism can have fulfilling lives and go on to make a great contribution to society.

Any research that aids our understanding of autism is to be welcomed, but having a child diagnosed with autism can often be a difficult and emotional experience, so it is important that parents get the right information to help them sort through the headlines and understand what any new findings mean for them.

The latest studies focus on tiny genetic changes that could increase the likelihood of someone having autism. This is extremely complex - there are over 100 genes involved and they all interact with each other and other environmental factors. Many more years work lie ahead before we understand enough about genetic links to apply this knowledge to helping people affected by autism.

While it is important that research continues, it is also crucial that those living with autism have access to appropriate services and support. At the National Autistic Society, we hear from many parents who are unable to get the help they need and whose children are failing to reach their true potential as a result.

Research is always important, but with over half a million people with autism in the UK, we must focus on meeting their immediate needs.

Contact the National Autistic Society at www.autism.org.uk

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